Spinal Program | Patient Stories

Dan and Alex - Gorham-Stout diseaseGorham-Stout disease: 12 years, two patients and one innovation
Dan and Alex are athletic, hockey players from Hingham, Mass. Both were diagnosed with Gorham-Stout disease, also called "vanishing-bone" disease. Read about their friendship and find out why Alex was out of the hospital just days after his spinal fusion surgery while Dan's experience reads like "War and Peace." 

ChloeMy scoliosis story: Unbraced…after 2 years
Boston Children's Hospital scoliosis patient Chloe reflects on life with (and after) a scoliosis brace.

AbbyMy scoliosis story: One year later—celebrating surgery
Abby was one of the first kids to have MAGEC rod surgery for scoliosis. Now, she's biking, swimming and running and needs far fewer surgeries.

AaronIdaho mom goes the distance to help teen with scoliosis
Aaron is one tough kid. Born with a heart defect, he survived a stroke at age 3. Even though he’s confined to a wheelchair and has special needs, Aaron always has a smile on his face. When local doctors refused a life-saving surgery, his mom went the distance to find a surgical team that could balance his conditions and correct his scoliosis.

DylanThe art of healing: Spinal fusion patient Dylan Morang fights through pain for his art
Dylan, a 24-year-old spinal fusion patient from Maine, tapped into his inner artist before and after his two-month hospital stay.

DavidIt’s MAGEC: new type of scoliosis surgery sparks a smile
Seven-year-old David is one of first U.S. patients to have MAGEC surgery for scoliosis. The magnetic growing rods mean he no longer needs a back brace and will have to have far fewer surgeries during childhood. David and his family celebrated by burning his dreaded back brace in a bonfire. It’s definitely reason to smile. 

TaylorScoliosis Surgery: From Tears to Smiles
When Taylor learned she needed surgery to treat her #scoliosis she was scared. Keeping close communication with her Boston Children's doctor, Michael Glotzbecker, made things far less overwhelming.

ChloeChloe Conway: Embrace the Brace
Chloe says scoliosis can be hard to deal with at times, but ultimately makes her a stronger person. Since beginning treatment at Boston Children's, Chloe has organized a #scoliosis support group. Read her blog and about learning to #EmbraceTheBrace.

AnjellinaAnjellina Guiliano: Around the bend
For  most children with scoliosis, the path to recovery is marked by simple observation and bracing. But when one patient battles two curves, her path - and spine - take an unexpected turn.

VisceriaOne patient's story: living with scoliosis
Visceria Givans is a student athlete, diagnosed with scoliosis in grade school. She received corrective spine surgery at Boston Children's Hospital and a few years later and is actively playing sports again.