Patient Resources | Overview
The social worker on your child's care team can provide support to parent and other caregivers and patients in coping with liver disease, connecting with community resources, and coordination of care with community providers including early intervention and schools.
For detailed information about visiting Boston Children's Hospital, accommodations and other available resources, please visit the main Boston Children’s Patient Resources page. You may also find the following resources helpful.
External resources for liver disease
Boston Children’s does not unreservedly endorse the information found on the websites listed; these are provided as a supportive resource for our families.
- American Liver Foundation
- National Institute of Diabetes and Digestive and Kidney Diseases Health Information Center
- Children’s Liver Disease Foundation
- Children’s Liver Association for Support Services
- Liver Families
- Family Voices: a network of family-led organization across the United States that provide support to families of children and youth with special health care needs.
- Massachusetts Department of Public Health, Division for Children & Youth with Special Health Care Needs: has a number of helpful programs and resources. Its Community Support Line (1-800-882-1435) offers information, technical assistance, and referral for families with children and youth with special health care needs.
Enteral (tube) feeding support
- National Patient Air Transport HELPLINE (1-800-296-1217): provides information about charitable medically related transportation.
- Mercy Medical Angels: provides assistance in the air with commercial airline tickets and volunteer pilots and on the ground with gas cards, bus, and train tickets.
Health Care for All’s Helpline (1-800-272-4232): answers questions about health care in Massachusetts, including general insurance questions, co-payments, health insurance rules, and program eligibility.
NeedyMeds.org: a private nonprofit website with information on patient assistance programs by drug name and diagnosis. Has a drug discount card and links to generic drug programs by state.
The hospital’s Financial Counselors are a helpful resource regarding billing and insurance questions and can be reached at 617-355-7201.
Some organizations may be able to assist with out-of-pocket medical costs: